Receiving a diagnosis of keratoconus can be overwhelming. It’s a condition where the cornea, the clear front surface of the eye, gradually thins and bulges outward into a cone shape, causing distorted vision. But don’t worry, here’s what you need to know and the steps you can take:

Understand the Diagnosis

Take a deep breath. It’s normal to feel anxious or uncertain. Keratoconus is a progressive condition, but with proper management, you can maintain good vision and a normal lifestyle. Educate yourself about the condition. Ask your doctor for a detailed explanation of keratoconus, its progression, and the available treatment options. Consider bringing a friend or family member with you to listen and learn about your diagnosis. Taking notes during your appointments or asking your doctor for a summary can also help you better understand what you’ve discussed.

Find a Keratoconus Specialist

Not all eye doctors have the same level of expertise in treating keratoconus. Seek out an ophthalmologist who specializes in corneal diseases and has experience managing keratoconus. A specialist will be able to accurately assess your condition, recommend the most appropriate treatment plan, and monitor the progression of the disease.

Don’t Rub Your Eyes!

This is crucial. Eye rubbing can worsen keratoconus by further weakening the collagen fibers in your cornea. If your eyes are itchy, use lubricating eye drops instead. Antihistamine eye drops can also help with allergy-related itching.

Slowing Progression

Corneal Collagen Cross-Linking (CXL): If your keratoconus is progressing, CXL is a highly effective, minimally invasive procedure that can slow or even halt the progression. It strengthens the cornea by creating new collagen cross-links.

Regular Monitoring: Keep up with all your appointments. Keratoconus is a progressive disease and it is impossible to predict how it will change over time. Regular monitoring is the best way to stay on top of your ocular health and adjust your care plan as needed. Even if your vision seems fine, do not skip your medical appointments.